Sickle Cell Disease: "Break the Silence, Let's Care"

Today is World Sickle Cell Day – Precinct Reporter Group News

NGO Set To Tackle Sickle Cell Disease

According to him, "On this day, we stand with sufferers of the disease and urge them to keep on the good fight against whatever limitations the disease may have foisted on them".

"Children, whose parents have sickle cell anaemia, have high chances of suffering from this disease".

Sickle cell disease is caused by an inherited group of disorders that make red blood cells contort into a sickle shape. "Much as it is a matter of the heart, intending couples should be properly guided". It is present on four continents: in sub-Saharan Africa and in the Maghreb, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil, Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). The videos show families the steps they can take to ensure that children born with SCD are diagnosed promptly so they can get proper medical care.

She maintained that if the hematopoietic stem cell transplantation could be sustained, it would go a long way of bringing succour to carriers of sickle cell disease, just as she commended the recent agreement between the Federal Ministry of Health and May & Baker for the production, development of regulatory guidelines for the assessment and registration of phytomedicines in Nigeria. Sickle cell anaemia is seen from childhood.

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Contributing, Dr Magdalene Odunvbun, a consultant paediatrician, advised parents and guardians of sickle cell patients to adopt adequate nutrition that could increase the quality of their lives.

The former NFL baller launched a national health education campaign, Be Sickle Smart, to raise awareness about the disease that disproportionately affects African-Americans.

As we commemorate this day, we need to remind the government of the need to avail hydroxyurea to thousands of Ugandans living with the sickle cell disease.

Organisers of the event explained that the programme was aimed at creating awareness about sickle cell disorder, its prevention and management, for both senior secondary school students and residents of the territory. It is possible for us as a nation to set a target year for total eradication of sickle cell anemia.

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